inaugural OC walk

Hydrocephalus. We think about it daily. It’s not a matter of if Shea will have another brain surgery, it’s when. Shea made it through a brutal flu season with a frightening amount of antibiotics and an ER visit to rule out shunt failure, only to rejoice at the news that it was influenza. I realize it’s absolutely ridiculous that we’re finding joy in an influenza diagnosis. I recently caught up with another hydrocephalus mom and found out her son was able to get his shunt removed. I was thrilled. Perhaps, so thrilled that I forgot the magnitude of our conversation. This mom quickly reminded me of just how ridiculous hydrocephalus is. I was happy that her son experienced shunt failure and endured another brain surgery. Ridiculous.

Surf 4 Shea was started to bring awareness to the condition; fundraising has been the icing on top. Pieter and I have had several discussions about what our “Surf 4 Shea” event may look like one day and we simply have not found something worth getting excited about. That is, until Hydrocephalus Association approached us about starting a Walk to End Hydrocephalus in Orange County.

You all know we can’t just pass on the opportunity to make this something special. We’ve been so fortunate to have support that runs deep and we can’t wait to share this latest adventure with our community. We would love nothing more than to have you there with us! So, save the date: Saturday October 12, 2019 in Huntington Beach (Huntington St. + PCH). Under the “Get Involved” tab, you will find our WALK page where you can join our team ( Spread the word + get pumped.