virtual

2020 has been filled with so much change and many challenges along the way. We want to embrace these changes best we can; therefore, we have made the decision to go virtual with this year’s hydrocephalus walk. We truly feel it is in the best interest for all of us. Pieter and I recently heard a hydro dad comment that we are one group that may be more prepared for this pandemic than most. His intention is that we already live with the daily concern and unknown that goes along with shunt malfunctions, and we’ve adapted to the travel restrictions and intentional social distancing that come along with our children’s health, but must persevere. We have found ways to live, and this event will be just that, another way to spread awareness and fundraise in the midst of a pandemic.

That said, Orange County will no longer be having a WALK on October 10, 2020 this year. Instead, we are joining the national organization in their virtual WALK to end hydrocephalus. Consider this a movement instead of a walk. We are encouraging everyone to choose something they enjoy doing or challenge themselves to do and raise awareness for hydrocephalus by encouraging your network to donate to our cause. You may choose to walk, run, dance, nap, or juggle for hydrocephalus. The possibilities are endless. It may come as no surprise to you that Pieter will be incorporating something we’ve always wanted to do, #surf4shea, by surfing once a week for the next six weeks. (We chose six weeks simply because it allows us to devote time to hydrocephalus before the newest addition to our family arrives. You may choose a ten day stretch, something shorter or something longer.) Shea and Holly, on the other hand, will swim #4shea by making sure they’re swimming frequently during this time. While we post our movement, we will incorporate hydrocephalus facts + awareness. We will be making a mindful effort to post on social media and keep up the momentum. We will be using the hashtag #4shea to incorporate anything you may choose to do (i.e. swim #4shea, bike #4shea, sing #4shea) AND #hydrostrong to connect us to the national movement. We hope everyone can share something they love doing #4shea.

The website will work the same way it has in previous years. You can join our team (surf4shea) under the GET INVOLVED TAB, by selecting WALK. Simply click the ‘Join Surf4Shea Team’ button and ‘Join Team’ on the next page you are directed to. This larger movement with conclude with a celebration that will take place on September 26, 2020. We will be joining walks all over the states to celebrate all things hydrocephalus and our accomplishments in the midst of the pandemic, virtually. Be sure to join the Orange County Hydrocephalus Association WALK Facebook page and follow along our social media accounts (@surf4shea) to keep up with the latest.

There will still be several opportunities for sponsorship and fundraising. Shirts will still be distributed; however, this year, they will likely be picked up in September in a parking lot TBD. Additionally, a possible silent auction in the works - items are always greatly appreciated. Videos and photos are encouraged. Emails to friends and family are the sprinkles on top. We know it is a challenging year for many, but we are committed to spread awareness and continue our fundraising efforts in a different format for the greater good.

Per usual, we got this!

Love + hugs,

Pieter, Erin, Seamus, Hollander + Baby #3